Thursday, November 9, 2017

Not the end, but a new beginning.


All the content on the blog will remain the same, and I urge anyone with any questions regarding the content of the videos to email me at allforbu@gmail.com

Remember, these blog posts are meticulously tagged so that if you're looking for information on a specific subject or supplement, you can click the tags and find everything we've ever reported on any given thing. Again, if you'd like more information, I'm happy to share our experience to help you on your journey to starting your own research. Just email me!

Thanks again to everyone that's been there throughout this whole journey. This is not the end, it's just the beginning!


Wednesday, September 6, 2017

Year Four, Week 10 (166th Weekly Video!)


In this video:
*HURRICANE IRMA
*fluttering eyelids?
*not acting like himself
*fixating on the velcro on his shoes
*EEG was an absolute joke...so now what?
*fever and cold



Wednesday, August 30, 2017

Year Four, Week 8 & 9 (164th and 165th Weekly Video!)


In this video:
*started B multi
*rash on his lower back...cause unknown
*hair washing is getting better!
*he's on to us! throwing out his injections every time he sees them
*new soap/bubble bath at bedtime
*gave me kisses!
*he let his OT cut his bangs!!!!
*his ABA her first hug! and it was unprompted!
*exploring his tongue and mouth, stimming. Chewing on paci tips



Wednesday, August 16, 2017

Year Four, Week 7 (163rd Weekly Video!)

In this video:
*haven't been keeping up on brushing, affecting his sleep and SIB
*very up and down in mood, manic
*no iPad during ABA this week
*ran out of curcumin, substituted turmeric
*deleted Endless Reader app
*new diaper brand and size
*taught him to sign "jump" independently in less than 24 hours
*had to reschedule EEG


Monday, August 7, 2017

Year Four, Week 6 (162nd Weekly Video!)


In this video:
*ABA meeting at therapy center
*sensory aversion to his shoe?
*iPad dying an hour before bed = better sleep
*finished Motrin protocol
*attempted to phase out plastic cups and replace them with steel...no go.
*asking me to rub the inside of his mouth
*tolerating having the iPad for less time
*got his haircut...AT THE THERAPY CENTER
*we went to DISNEY


Tuesday, August 1, 2017

Year Four, Week 5 (161st Weekly Video!)


In this video:
*Motrin protocol - keeps refusing AM doses
*Night waking - developmental leap? Lack of iPad before bedtime helps
*scalp input to prepare for upcoming EEG
*lack of diapers all day except to poop - going great! No more peeing all over the house!
*doing great with his cousins


Tuesday, July 25, 2017

Year Four, Weeks 3 & 4 (159th/160th Weekly Video!)


In this video:
*Sleep experiments: mommy, daddy, humidifier, socks, oils, etc
*random fevers continue
*started magnesium cream, no more epsom salt baths!
*water play = peeing on floors?
*brief bubble obsession
*steel cup (thermos) for water
*using spaceship tent
*VACATION!
*choline, NAC, DDR, acetyl-carnitine and MB12 shots all missing at some point during the week
*back to "eating" doorknobs
*Pediatrician appointment
*stuck hands in poop diapers to explore smells
*still peeing everywhere, started taking away iPad when he takes off his diaper
*sleeping well as long as he has a fresh diaper before sleep


Monday, July 10, 2017

Year Four, Week 2 (158th Weekly Video!)


In this video:
*messed around with fish oil dose all week, landed on 2tsp daily, first thing in the morning
*started Kindergarten!
*played Wii at the ABA clinic
*so hyper! but so engaged
*daddy @ bedtime = MAGIC!
*signing "back" and "tummy"
*peeing EVERYWHERE
*starting magnesium sulfate cream this upcoming week


Monday, July 3, 2017

Year Four, Week 1 (157th Weekly Video!)


In this video:
*started fish oil (Barlean's), possibly affecting sleep
*smiling for selfies and liking mirrors
*PT picked up his hair, and he LOVED it! No SIB that day
*SO HYPER
*refusing to keep on wet diapers
*asked for grapes
*new orange/frankincense oil
*playdate at a friend's house
*chewing/sucking on ALL the chargers!
*night wakings


Monday, June 26, 2017

Year Three, Week 52 (156th Weekly Video!)

This video makes THREE FULL YEARS of vlogging on this blog/channel!

TWO YEARS AGO



In this video:
*increased inulin daily dose
*self-injury increased, though in a different way
*does better on shot days, or is it because of lack of NAC?
*mouthing metal A LOT, and everyone has noticed
*tolerated a LOT of social situations, including playing catch with a new kid!
*eating ALL the chargers
*allowed a pretend haircut!
*did SO WELL at the birthday party this year! Huge difference from last year
*had his first "accident" in months, but it was totally our fault!
*started fish oil today



Tuesday, June 20, 2017

Year Three, Week 51 (155th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*taking detailed notes
*off probiotics, tummy had to adjust
*starting Nemechek Protocol
*social gains! coping skills!
*throwing half his food on the floor again
*FINALLY got his 4th hour of speech!




Tuesday, June 13, 2017

Year Three, Week 50 (154th Weekly Video!)

TWO YEARS AGO



In this video:
*Vomiting. Viral? Food poisoning?
*Random fever
*ABA and case manager meeting with Speech and OT
*going to start Proloquo with ABA as well
*Speech and PT re-evaluations
*still using orange essential oil, added frankincense
*doubled turmeric
*sound EXPLOSION. 
*fixated on puzzles


Wednesday, June 7, 2017

Year Three, Weeks 48 and 49 (152nd and 153rd Weekly Video!)

TWO YEARS AGO (1,2)

ONE YEAR AGO (1,2)


In this video:
*sick for almost all of May
*easily overstimulated
*way less self-injurious behavior since we started brushing!
*"4th hour" speech therapist moved away...STILL no 4th hour of speech!
*Annual Fundraiser!!!! <3
*~*~*~*~*
*Pool day!
*sick again, changed up our "approach"
*"BEST DAY EVER" in ABA
*PT re-evaluation


Wednesday, May 24, 2017

Year Three, Week 47 (151st Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*SICK all week, and fever almost every day
*obsessive compulsive behaviors increased while sick
*out of calcium
*turmeric! (as an anti-inflammatory)
*sense of humor is out of control! :)
*dancing so much! and loving music and singing
*"AWAY" and "ALL DONE" in the same night
*AllForBu fundraiser next week!



Friday, May 12, 2017

Year Three, Week 46 (150th Weekly Video!)

TWO YEARS AGO


 In this video:
*new students at the therapy center
*overall great week at therapy, learning so much!
*spelling, letter sounds and sight words
*coming down with a cold :/
*progress on the 4th hour of speech



Monday, May 8, 2017

Year Three, Week 45 (149th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*did great traveling this week
*Thyroid results still not in, first test was extraordinarily high
*Anne Connolly results, brain inflammation...need another EEG
*Medications possibly starting soon, pending lots of research
* Our GoFundMe page is back up, please share and donate, if possible!




Thursday, April 27, 2017

Year Three, Week 44 (148th Weekly Video!)

TWO YEARS AGO



In this video:
*SO MANY CHANGES at home and in the household
*doing Wilbarger brushing again to try to decrease self injury
*had to cancel ABA twice this week
*emergency bloodwork
*Porphyrins test results are also abnormal, no details yet
*increased protein/fat intake so that it takes the place of the carbs he basically lives off of




FORGOT TO MENTION, he's saying "HEAD" (or attempting consistently, anyway) when we sing "Head, Shoulders, Knees and Toes" at bedtime!


Friday, April 21, 2017

Year Three, Week 43 (147th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*meeting of the therapists
*doing well using AAC, and balancing iPad/PROMPT/ASL
*discovering his sense of smell in the strangest way


Wednesday, April 19, 2017

Year Three, Week 42 (146th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*no more bath bombs
*still recovering from Daylight Saving Time
*LOTS of new stuff in ABA!
*abnormal results on the Anne Connelly
*self-injurous behavior is getting worse/more intense


Monday, April 10, 2017

Year Three, Week 41 (145th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*Changes to the channel/blog
*ran out of GABA
*Monday was a ROUGH day at therapy
*did better at the ABA clinic this week
*diluted the DDR Prime
*finally got his hair cut
*starting to "practice" haircuts at OT
*starting to learn how to use an iPad as a communication device



Friday, April 7, 2017

Changes to the channel/blog...




Basically, for the sake of affording my son more privacy as he gets older, I will be removing any video from my youtube channel (and hence, this blog) that has his face visible in it. The blog posts will remain, and all topics are easily accessible from the sidebar in the "categories" section.

If there's further information from a particular video you need, please either comment on the corresponding blog post with your question, or email me at allforbu@gmail.com, and I'll do my best to answer your question with updated information. Thank you all for understanding and as always, thank you for watching and following our journey.

Monday, April 3, 2017

Year Three, Week 40 (144th Weekly Video!)

THREE YEARS AGO

TWO YEARS AGO

ONE YEAR AGO


In this video:
*Huge accidental BONK to the nose/head
*urine collection/test postponed
*Anne Connoly blood test collected and sent out
*requested diaper changes lately
*knows SO MANY signs!
*didn't want to go to ABA clinic, ended up leaving early
*climbed on the desk again, for the first time in a long time
*not very interested in peaches, but eating pears and apples
*got the go-ahead from his speech therapist to set up his communication device



I forgot to mention in the video (because I discovered it after the fact) that apparently, whenever Bu's bottle of Biotin ran out, I never replaced it. Oops! I couldn't even tell you when in the last month that happened, but he's been doing so well lately, I don't want to put it back in rotation until we see the specialist again and determine whether he really NEEDS it.



Monday, March 27, 2017

Year Three, Week 39 (143rd Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*silly, mischievous and pranking!
*no longer sick!
*sleep is taking AGES
*learning the signs for "iPad", "mom," and "dad"
*taught him to sign "I love you!"
*meetings of the therapists, including his case manager
*up to 13 signs!
*approved for 24 weeks with our ABA therapist!



Monday, March 20, 2017

Year Three, Week 37 and 38 (141st and 142nd Weekly Videos!)

TWO YEARS AGO 1/2

ONE YEAR AGO 1/2


In this video:
*DDR Prime update
*chose to go almost a whole day without the iPad
*taking a long time to fall asleep (except this last week, when we spent the whole week cosleeping)
*"aweh" does NOT mean "abuela" apparently, but rather, "go away!"
*taking BITES out of food!
*SO SICK that we actually took the ENTIRE week off therapy...that's NEVER happened!


Monday, March 6, 2017

Year Three, Week 36 (140th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*Started the week shaky, but got way better as the week progressed
*lots of repetitive head shaking. Seizures or sensory?
*exhibiting aggressive behavior?
*removing all oils next week to try to curb self-injury
*setting up third ABA/OT/Speech meeting


Wednesday, March 1, 2017

Year Three, Week 34 and 35 (138th and 139th Weekly Videos!)

TWO YEARS AGO 1/2

ONE YEAR AGO 1/2


In this video:
*writing and spelling his own name!
*fighting off a sick, but never actually got sick
*obsessively opening and slamming doors to stim
*PERFECT hearing test, no more audiologist!
*climbing on EVERYthing
*refused to eat meat made by Abuela
*great trip to Disney!
*repeating sounds, appropriately clapping
*self-injury, DDR related?




Monday, February 13, 2017

Year Three, Week 33 (137th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*PROMPT therapy!!!
*tapping his chest to indicate something is his or for him
*rubbing his nose and lips on clothes all week
*loving his gear puzzle again
*wanting us to watch us play with puzzles and mag-float. engaging us to "play" with him by watching and applauding
*hitting his head A LOT and wrist banging, iPad may be a factor
*ATEC!!! 85 to 77 to 61!!!


I forgot to mention in the video that Bu has started saying "A-deh-deh!" when he wants to say "I did it!" It's so freaking cute. He's also started giving me eskimo kisses (I know that's not the PC term, but I can't FIND a PC term for it) but when I asked him for "nose" the other night, he just laughed and pointed at his own nose LOL silly guy!



Monday, February 6, 2017

Year Three, Week 32 (136th Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*audible burps
*"Go Way"
*4th hour of speech has been APPROVED!
*independently tracing letters E and F
*random night wakings
*DDR Prime gains > side effects
*weekly clinic visits for ABA
*SO SOCIAL with new playmate!
*"give me"


SUCH WONDERFUL GAINS THIS WEEK!




Monday, January 30, 2017

Year Three, Weeks 30 and 31 (134th and 135th Weekly Videos!)

TWO YEARS AGO 1/2

ONE YEAR AGO 1/2


In this video:
*ABA went on vacation
*meeting between therapists
*zoo trip
*fish tank!
*DDR Prime update
*appetite shift
*said "cow"
*made MAPS appointment
*reorganized Learning Area
*new reverse osmosis filter
*"sing"
*started third hour a week of PT
*might lose ABA in March, and will most likely lose our therapist




Friday, January 13, 2017

Year Three, Week 29 (133rd Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*"A-weh!"
*so many approximations and imitations!
*still eating loads of puffs, but spitting out half of what he tastes
*drinking A LOT of juices, which means he's finally consistently taking all his medicines/supplements
*pooping consistently, but always in a diaper
*very chatty, affectionate, engaged, playful...extremely social!
*started DDR Prime, affected his sleep in a pretty negative way


I should probably mention that it's been about 2 months since I've given him Niacinamide. I always gave him the tiniest amount, but we've found he does better without it. I keep meaning to post about it and I always forget.




Tuesday, January 10, 2017

Year Three, Week 28 (132nd Weekly Video!)

TWO YEARS AGO

ONE YEAR AGO


In this video:
*record for not pooping (5 days!)
*good news = pooped in potty!
*"co-way!"
*assessed as reading at or above typical age level
*coarse epsom salt = no sleep!
*really into applause and us saying "yay!"
*eating puffs 24/7


Tuesday, January 3, 2017