Monday, March 28, 2016

Year Two, Week 39 (91st Weekly Video!)

ONE YEAR AGO


In this video:
*Daddy did his 23andme
*sick over the weekend
*boosted acetyl-l-carnitine
*learned to sign "pacifier" in a matter of hours!
*licking all the edible things before drinking/eating
*ate chicken nuggets and tried a new food: Rice Rollers
*prepping for the MAPS appointment in less than 2 weeks!







Friday, March 18, 2016

Year Two, Week 38 (90th Weekly Video!)

ONE YEAR AGO TODAY…


In this video:
*one year on Leuco!
*we do "typical" things now! WIN.
*sensory-friendly films!
*did well with a new therapist, did great overall in therapy again
*really into his craft project this week!
*possibly getting sick again? (noooooooooo!)
*recorded an ABA session for the speech therapist to observe
*new signs, signing appropriately
*bloodwork is complete!






Monday, March 14, 2016

Year Two, Week 37 (89th Weekly Video!)



ONE YEAR AGO…

In this video:
*so many changes in routine, but he rolled with the punches!
*limiting his diet again, he's been refusing fruit lately
*bathtime reading
*bloodwork next week




I forgot to mention that this past week, Bu's pediatrician passed away after a long fight with cancer. He was the first doctor to ever make us feel really listened to and supported in this journey, he was a wonderful man and he will be greatly missed.


Monday, March 7, 2016

Year Two, Week 36 (88th Weekly Video!)



ONE YEAR AGO...


In this video:
*so engaged with Signing Time this week!
*interested in drinking from spout cups and open cups
*said "hug" and repeated "aqui" and "bye"
*100% awesome therapy sessions this week
*finally got all the therapists together!
*maybe his first movie theater experience next week?