Friday, November 20, 2015

Tuesday, November 17, 2015

YouCaring Fundraiser Page!

I've heard good things about YouCaring (like that they don't keep as big a cut as GoFundMe does)…so I decided to start Bu a fundraising page on the YouCaring site for his upcoming annual MAPS visit. I sort of threw together a quick video for anyone new to our page and our family!



You can find the link to the fundraiser HERE.

PLEASE SHARE! Any little bit helps, even if it's spreading the word!

Thanks as always for your support, friends!

Friday, November 13, 2015

Year Two, Week 20 (72nd Weekly Video!)



In this video:
*Med Waiver…no news is good news?
*EEG cancelled YET AGAIN, will 4th time be the charm?
*Steering the trike on his own in PT!
*tolerating more kids!
*EATING CHICKEN NUGGETS AGAIN. YAY for a new/old food!
*CLO might be affecting him adversely…super hyper and night waking
*Off CLO and TMG
*NEXT WEEK: EEG (supposedly) and starting Nystatin



I forgot to mention that Bu didn't have OT at all this week because his therapist was on vacation, not sure if that lack of sensory stimulation might have been affecting his behaviors?

Friday, November 6, 2015

Year Two, Week 19 (71st Weekly Video!)


In this video:
*curious about new toys and books over iPad
*Halloween fun!
*Daylight Savings Time and sleep >_<
*restarted cod liver oil..possible histamine issues?
*tolerating babies/kids in "our space"
*waving consistently, learning sign for "book"
*EEG next week (FINALLY)