Thursday, March 26, 2015

Weekly Progress Video #39

Calculating our medical expenses for this month and the next, and…I owe less on our car. I know I am being bit of a downer this week, but I don't sugarcoat things with you guys! I share everything about our journey because if it will help anyone somehow to know these things, I want to put them out there. Also, not gonna lie, it's cathartic to have a place to share the stress of these things. You guys are my free therapy! 
Details in this week's progress video!

In this video:
*medical expenses are ever-increasing and overwhelming!
*sleep update...a couple STTNs, but also a couple all-night parties 
*L-carnosine and Leucovorin update
*rambunctious afternoon crowd might be affecting Bu's mood in therapy 

Thursday, March 19, 2015

Weekly Progress Video #38

There's a lot going on this week, but it's been mostly good, so we'll take it! 

Please be sure to check out the Jewelry In Candles Fundraiser for Bu's medical expenses, or you can donate directly at our GoFundMe here. Thank you!

In this video:
*Geneticist FAIL
*collecting specimens for stool test this week, prepping for rest of labwork
*switched magnesium back to glycinate
*added l-theanine and l-carnosine this week
*starting Leucovorin this weekend
*surprised me by doing well with a new therapist
*consistently waking up once a night, decided to have a party in the middle of the night this week
*Starting the ABA process
*Discovered the Preschool Prep alphabet

Wednesday, March 11, 2015

Weekly Progress Video #37

Please check out our "JEWELRY IN CANDLES" FUNDRAISER!!! We'd appreciate any help you can give with Bu's medical bills…you can also simply donate at GoFundMe. Thank you!!!

In this video:
*Our MAPS appointment and road trip
*hugging random kids at therapy!
*Irritable and his sleep is off, daylight savings time?
*seems to be falling more than usual 
*has a geneticist appointment in the next week to review labwork
*working on "give me" in Speech
*did great at a family birthday party

Tuesday, March 10, 2015


My incredibly generous friend Felicia (she has also written posts for my parenting blog before) put together a fundraiser for Bu's lab work and treatments. She sells Jewelry In Candles, which is just what it sounds like! You buy an awesome candle, and inside it, you'll find a ring (sized to you!), earrings or necklace. A gift in a gift!

The proceeds are going to Bu's medical bills, I hope you will all share and check out her products! Please click THIS LINK for the event, and make sure you like Felicia's business page, Jewelry In Candles with MrsTrum​.


EDIT: If you can't make a purchase right now or would prefer to donate directly to Bu, please go to our GoFundMe page. Thank you so much again for any support you can offer!!!

Tuesday, March 3, 2015

Weekly Progress Video #36


:::anxious-excited-nervous-freaking out:::

(as you can tell, because I said "hotel fare". What the hell am I thinking??? LOL)

In this video:
*Getting ready to leave to meet our MAPS doctor!
*Meet the Vowels is going EVERYWHERE with us lately
*Doing well in his new big-guy bed
*His pop-up tent is his new favorite thing
*Hugging his friend at therapy!