Thursday, October 30, 2014

Weekly Progress Video #18



I forgot to mention something in the video that's a pretty big deal!

Bu used to be pretty easy going in terms of routine when he was more "in his own world", but the better he gets, the more aware he is…and the more he's come to expect certain things to happen in a certain way. For example, he knows that when we leave the therapy center, I can go north or south, but I always go south to drive home. If he notices that I'm pulling out of the spot in such a way that the car will end up pointing north, he LOSES IT.

Just to give you an idea of the attention he pays to details and our routine LOL

So yesterday, I had to go to the grocery store on the way home from therapy. I knew he was going to have a screaming/crying fit as soon as I made that turn on the street where the grocery store is instead of continuing straight to go to the house. Before we even came out of the parking space at therapy, I said to him, "Listen, Bu…we are going to go home. But first, we are going to the store. So store first, then home. First the store, then we go home. Ok?" Then I drove as usual, and when we were a couple of blocks from the turn, I said again, "Ok Bu, we are going to go to the store. First, we go to the store, then we go home, ok? Store, then home." He chatted something back to me, and sure enough, I made the left turn with no fuss from him. We turned into the parking lot, and he happily led me to a shopping cart so we could strap him in and we could shop.

It makes such a HUGE DIFFERENCE in our lives that he can now understand when we speak to him, and we can use this to prepare him for changes in his routine. Absolutely incredible. Such a small thing, and yet it makes such a huge difference for us all.



As always, you can click here to see this video on my YouTube channel if you can't see if above. And thanks for watching!


In this video:
*Pediatrician appointment
*boosted his folinic acid and B2, DMG update, considering TMG
*Throwing overhand!
*Compression Vest, weighted blanket
*LOTS of word approximations this week
*sensory and OT progress
*Therapy scheduling


Wednesday, October 29, 2014

#thepuzzlepiecepumpkinproject

Someone on Facebook had a great idea to decorate Jack O Lanterns with puzzle pieces this year, to show parents that might be taking their ASD kids trick or treating that they have an ally that "gets it" at your house.

We were inspired, so we made our own "All For Bu" jack o lantern!




Monday, October 27, 2014

!!!

"Car"

"Go"

"Daddy"

"MOOOOOOMMMMM"


Words Bu has used appropriately this weekend.


He's NEVER said "mom" before, btw. And he said it while holding my hand and pulling me somewhere while I was talking to his daddy. I wasn't moving fast enough, hence the Moooooommmmm lol 


I'll take it!

Thursday, October 23, 2014

Weekly Progress Video #17



If you are interested in the Vitamin B12 patch video, you can find that post here. And you can't see Progress Video #17 posted above, you can see it here.



In this video:
*Bu is ASKING for homeschool assignments!
*He suddenly loves his trampoline
*Stimming with his tongue?
*Holding iPad up to his ear, not sure if its sensory or hearing related
*Diet and supplement update…it's been TOUGH
*FINALLY received his weighted blanket!
*Yet ANOTHER change to the therapy schedule -_-

Monday, October 20, 2014

Bubu's Homeschool

It's been going great so far! We've been doing homeschool tasks daily for 3 whole weeks now. Bu has actually started ASKING for "work", and it's carried over into his therapy time at the center, as well.

Here's some of the stuff we've been working on. Lots of online printables, repurposed old toys, and dollar store finds have turned into a nice little "curriculum" for us! 

Thursday, October 16, 2014

Weekly Progress Video #16



Click THIS LINK if you can't see the video above!

Anyone that's seen a MAPS doctor, do you have any advice for me? Anything I should make sure to ask for as far as testing, or any suggestions on getting prescriptions for his supplements to help costs? Also, I'd love to hear any personal experiences with chelation! TIA!


In this video:
*Trying on our new schedule
*His eating is better now that he's no longer sick
*We have appointments set for TWO MAPS doctors…now to pick which one we'll go to!
*A supplement update, including a "mitochondrial cocktail"
*A huge improvement in his receptive language!


Thursday, October 9, 2014

Weekly Progress Video #15



If you cannot see the video above, please click HERE to see it at the source.

Yay for new schedules!

In this video:
*Homeschooling update
*More sick?!
*Obsessed with veggie chips
*OT doesn't think the time is right for ABA, and we agree!
*FINALLY got our favorite PT full time!
*SENSORY WIN! He played with shaving cream this week!
*Set up his Ikea swing (finally)

Tuesday, October 7, 2014

Tape Resist Craft

This was originally posted on my personal blog in July 2012, but it's now private and since it's such a popular pin, I thought I'd repost so pinners could actually read the post! :) 


Hubs' Birthday!



Yesterday was my husband's first birthday as a daddy! I wanted to do something special for him, so I decided the baby and I should make him an art project, inspired by something I saw on Pinterest (of course).

I grabbed an 8X10 canvas (I keep a stack of plain white canvases around the house in case the inspiration for something like this strikes. I am not joking). I taped off a message on the canvas...it looks rudimentary, and it is. It would have looked much nicer if I had actual letter stickers or something, but unfortunately I don't keep those just lying around. It's ok though, it looks pretty sophisticated considering it was made by a 9 month old ;)

I then put the baby in a smock (I keep these around too. Not joking). It's huge on him because it's meant for kindergartners, but it served its purpose. I also opened 3 trash bags and put them down under the high chair (they were put away later to use for trash, no waste here!) and I wrapped the highchair tray in another bag (this one WAS tossed, it was a casualty. Moment of silence for the bag).

I squeezed some washable paint on the canvas and let the baby go! He was supervised the ENTIRE time, and I made sure the pacifier was always in his mouth so he wouldn't be tempted to bring his hands to his mouth until I could wash them. Clean-up was a breeze, and a few wet paper towels later, you couldn't even tell an infant had been finger-painting just moments earlier.

I blotted the excess paint off with a paper towel, and noticed it made a cool pattern, so I did it again more deliberately, then set it under a fan to dry. In the meantime, I made Hubs a coconut buttermilk pie. He doesn't like cake, so I usually make him a pecan pie for his birthday. This year I forgot to buy both pecans and a pieshell! My mom saved me by swinging by on the way to work with the shell (thanks, Mom!) but I decided to forgo the pecans since I had some sweetened flaked coconut and I just used the same recipe.

Once Hubs got home from work, the paint had dried, so we presented him with his gifts! He peeled away the tape to reveal the message. He loved our handiwork! And then, of course, there was the pie...it was DELICIOUS! Even better than the pecan, I'd say. Overall, a very successful birthday, if I do say so myself!









Monday, October 6, 2014

At-Home Therapy Room Ideas...

When I first started looking into at-home therapy and putting together a therapy room/area, I couldn't find ANY good info or ideas..it was very frustrating!

I now have a giant Pinterest board FULL of great ideas for an at-home therapy area. Let me know what at-home therapy or sensory item you can't be without!


http://www.pinterest.com/MommaFriendly/at-home-therapy-room/



Here's some photos of our room with out favorite items to use for sensory and cognitive activities:






I'll be doing videos in future posts about how we use the things in our therapy room for different sensory needs, and which items we've found give the most bang for your buck (either because we use the item so often, or because so many goals can be met with the same item!)

Our Makeshift Preschool Curriculum

Bubu was taking an extra-long nap, so I decided to haphazardly throw together a video on our homeschool "curriculum", how I organize our daily tasks, and what materials from our therapy room we use for our learning.



If you can't see the video above, please click HERE. And please, feel free to ask me any questions or leave me a comment if you have suggestions for (free or cheap) resources.



Friday, October 3, 2014

YAY!

OFFICIALLY got an appointment with a MAPS specialist!!! This is the next step in unlocking Bu's potential to progress as far out of autism as possible and into self-sufficiency and full-functioning adulthood!!!! <3

It's going to cost $500 for the initial consult, $600 for the lab work that follows, and $300 for the follow up visit to go over the labs and set up a protocol for treatment based on the test results… a total of $1400.

The appointment is in February, and we would appreciate any help in raising funds for this specialist visit!! Thank you in advance for donating or even sharing! <3

Please click the photo below to donate!


Thursday, October 2, 2014

Weekly Progress Video #14



Please watch the video HERE if you cannot see it above!

Anyone have info to share about hyperlexia? I'd love to hear any insight or firsthand experience!

In this video:
*Supplement update: DMG and 5HTP
*Hyperlexia? Definitely a head for patterns!
*More structured homeschooling
*Doing better in therapy, walking in without fussing
*ABA came up again, so I'm voicing my concerns/misgivings