Thursday, November 9, 2017

Not the end, but a new beginning.

All the content on the blog will remain the same, and I urge anyone with any questions regarding the content of the videos to email me at

Remember, these blog posts are meticulously tagged so that if you're looking for information on a specific subject or supplement, you can click the tags and find everything we've ever reported on any given thing. Again, if you'd like more information, I'm happy to share our experience to help you on your journey to starting your own research. Just email me!

Thanks again to everyone that's been there throughout this whole journey. This is not the end, it's just the beginning!

Wednesday, September 6, 2017

Year Four, Week 10 (166th Weekly Video!)

In this video:
*fluttering eyelids?
*not acting like himself
*fixating on the velcro on his shoes
*EEG was an absolute now what?
*fever and cold

Wednesday, August 30, 2017

Year Four, Week 8 & 9 (164th and 165th Weekly Video!)

In this video:
*started B multi
*rash on his lower back...cause unknown
*hair washing is getting better!
*he's on to us! throwing out his injections every time he sees them
*new soap/bubble bath at bedtime
*gave me kisses!
*he let his OT cut his bangs!!!!
*his ABA her first hug! and it was unprompted!
*exploring his tongue and mouth, stimming. Chewing on paci tips

Wednesday, August 16, 2017

Year Four, Week 7 (163rd Weekly Video!)

In this video:
*haven't been keeping up on brushing, affecting his sleep and SIB
*very up and down in mood, manic
*no iPad during ABA this week
*ran out of curcumin, substituted turmeric
*deleted Endless Reader app
*new diaper brand and size
*taught him to sign "jump" independently in less than 24 hours
*had to reschedule EEG

Monday, August 7, 2017

Year Four, Week 6 (162nd Weekly Video!)

In this video:
*ABA meeting at therapy center
*sensory aversion to his shoe?
*iPad dying an hour before bed = better sleep
*finished Motrin protocol
*attempted to phase out plastic cups and replace them with go.
*asking me to rub the inside of his mouth
*tolerating having the iPad for less time
*got his haircut...AT THE THERAPY CENTER
*we went to DISNEY

Tuesday, August 1, 2017

Year Four, Week 5 (161st Weekly Video!)

In this video:
*Motrin protocol - keeps refusing AM doses
*Night waking - developmental leap? Lack of iPad before bedtime helps
*scalp input to prepare for upcoming EEG
*lack of diapers all day except to poop - going great! No more peeing all over the house!
*doing great with his cousins

Tuesday, July 25, 2017

Year Four, Weeks 3 & 4 (159th/160th Weekly Video!)

In this video:
*Sleep experiments: mommy, daddy, humidifier, socks, oils, etc
*random fevers continue
*started magnesium cream, no more epsom salt baths!
*water play = peeing on floors?
*brief bubble obsession
*steel cup (thermos) for water
*using spaceship tent
*choline, NAC, DDR, acetyl-carnitine and MB12 shots all missing at some point during the week
*back to "eating" doorknobs
*Pediatrician appointment
*stuck hands in poop diapers to explore smells
*still peeing everywhere, started taking away iPad when he takes off his diaper
*sleeping well as long as he has a fresh diaper before sleep